News Local Cyprus marks Rare Disease Day 2020

Cyprus marks Rare Disease Day 2020

Rare Disease Day is marked every year on the last day of February in more than 100 countries around the world to raise awareness for people living with a rare disease and their families.

President of the Cypriot Parliament Demetris Syllouris marked the day in an opening speech at Friday’s plenary sitting noting that around 70,000 Cypriots suffer today from rare diseases.

“This day contributes to the public’s knowledge of rare diseases and prompts competent authorities to respond to the needs of people living with such conditions.

“It also aims to promote further research on a cure for such diseases and to encourage greater financial or other support to patients, many of whom are children,” he concluded.

Rare Disease Day was launched in 2008 by EURORDIS, a patient-driven non-profit alliance of 894 rare disease patient organisations from 72 countries.

The message of this year’s campaign is “Rare is many. Rare is strong. Rare is Proud.”

There are over 300 million people around the world living with a rare disease supported by their friends, their family, and their community.

There are over 6,000 identified rare diseases that affect about 5% of the population globally.

“Each rare disease may only affect a handful of people, scattered around the world, but collectively the number of people living with a rare disease is equivalent to the population of the world’s third largest country,” the organisation said in an announcement.

Top Stories

The coronavirus has killed 2.1 million people in the world, almost half in the Americas

The deaths in the Covid-19 pandemic around the world have risen this Sunday to 2.1 million, 15,800 of them registered in the last day,...

Germany expects EU approval for AstraZeneca COVID-19 vaccine on Friday

The European Medicines Agency (EMA) is expected to approve the COVID-19 vaccine developed by AstraZeneca and Oxford University on Friday, a spokesman of German's...

SMS: For the first time, physical exercise first

The number of the sms movement requests sent on Sunday to 8998 in Cyprus were significantly higher than the requests sent on Saturday and...

1,100 appointments for over 90 booked so far

As of this morning, the Vaccination Portal is available for citizens over 90 years of age. According to the Health Ministry, until 1:00, some 1,100...

Hooded persons throw stones against firemen and policemen

Around 18:00 on Sunday the Police received information about a fire in the yard of a school in Lakatamia. Members of the Police and...


Squash soup

Ingredients: 1 kg pumpkin, cut into small cubes, approximately 5 cups 2 medium (400g) sweet potatoes, cut into cubes, approximately 2 ½ cups 1 chopped leek, only...


No visit to Cyprus is complete without enjoying the traditional meal of many small dishes known as ‘meze’. This large feast, which has been a...

Prawns with fried cheese, barley shaped pasta

Put the barley shaped pasta into a small pan with salted water, bring to a boil and when tender, drain. Peal the prawns leaving...

Salmon and shrimp sheftalies

Mix all ingredients for tabbouli in a bowl and keep to one side so flavours can combine. Prepare the sheftalies: wash and soak the casing...