News Local Cyprus marks Rare Disease Day 2020

Cyprus marks Rare Disease Day 2020

Rare Disease Day is marked every year on the last day of February in more than 100 countries around the world to raise awareness for people living with a rare disease and their families.

President of the Cypriot Parliament Demetris Syllouris marked the day in an opening speech at Friday’s plenary sitting noting that around 70,000 Cypriots suffer today from rare diseases.

“This day contributes to the public’s knowledge of rare diseases and prompts competent authorities to respond to the needs of people living with such conditions.

“It also aims to promote further research on a cure for such diseases and to encourage greater financial or other support to patients, many of whom are children,” he concluded.

Rare Disease Day was launched in 2008 by EURORDIS, a patient-driven non-profit alliance of 894 rare disease patient organisations from 72 countries.

The message of this year’s campaign is “Rare is many. Rare is strong. Rare is Proud.”

There are over 300 million people around the world living with a rare disease supported by their friends, their family, and their community.

There are over 6,000 identified rare diseases that affect about 5% of the population globally.

“Each rare disease may only affect a handful of people, scattered around the world, but collectively the number of people living with a rare disease is equivalent to the population of the world’s third largest country,” the organisation said in an announcement.

Top Stories

Famagusta Hospital: 6 to be discharged, 4 admissions

Six more patients are to be discharged from Famagusta General Hospital the referral hospital for coronavirus, after their second tests came back negative. The Cyprus...

Another 30 people test positive for Covid-19

Another 30 people have tested positive for coronavirus, the Health Ministry announced on Saturday, a decline compared to yesterday's 40 cases. This brings the total...

UK coronavirus death toll rises to 4,313, up 20% on day earlier

The United Kingdom's hospital death toll from the coronavirus rose by 20% to 4,313 at 1600 GMT on April 3, the health ministry said. As...

Empty street is seen on Times Square

An empty Times Square is seen on the street following the outbreak of coronavirus disease (COVID-19), in New York City, U.S., March 18, 2020.

Top U.S. watchdog vows ‘aggressive’ oversight of Trump administration after intel firing

The top U.S. federal watchdog vowed on Saturday to continue to conduct "aggressive" independent oversight of government agencies, after President Donald Trump fired the...


Village olive pie

Mix the yeast with the lukewarm water and put it aside for about 12-15 minutes to settle.  Sift the flour with the salt into...

Skordalia (Garlic paste)

Rinse the potatoes and place, unpeeled, in a saucepan. Cover with water, add salt and allow to simmer for 20-30 minutes until soft. Drain,...

Village salad

A must-have with every meal is a village salad. You will find it in every tavern or greek restaurant you visit in Cyprus. Make...

Courgettes with eggs

Heat the oil in a frying pan and fry the courgettes at a medium heat until they soften. Add salt and add the eggs....